Saturday, January 15, 2011

Our Life - Now!

Well, it's been awhile since the last post. The kids went back to school, I started playing volleyball again, Cory went back to work. Everything you'd expect with a New Year starting. However, things would change drastically for our family. So, sit back, grab a tissue and bear with the long story:

Our story begins last November. Cory, Tim and Tim's friend Luc went to a motorcycle race the first weekend of the month. The boys had a great time, and came home with lots of exciting race incidents to share. Tim told of how he had crashed once, but got right back on the bike and ended up finishing 2nd in his class! He ended up with a bruise on his left leg from the crash. No big deal, right? A week later, he was fine.

December comes around and Jr. Jazz starts up. Tim plays two games during the month and his team ends up winning. Tim scores his first points ever in a game during the first game. The first points of the game/season too! The team and season are looking good. But, Tim complains that his left leg hurts after a game or after a long day at school. So, he ices it and takes some ibuprofen for the swelling. During the holidays, he has about a two week break from basketball, and his leg is fine, again.

His first week back to school after the break, he came home a couple of times and complained that his leg was bothering him. Tim is starting to come home from school with a limp. Last Saturday, he had a basketball game. He gallops down the court and won't jump at all. He doesn't notice that he is doing this. Also, when he walks, his left foot is pointing out to compensate for the pain. Of course he doesn't realize that he is limping, he can't feel any pain. I decide it's time to take him in to be looked at.

So, last Tuesday, I take him to the new Urgent Care in Riverton. Why there? Because I wanted an x-ray of his leg, thinking he might have a stress fracture, and his primary doctor doesn't do in-office x-rays. So, a doctor looks him over and says he might have Osgood Schlatter Disease. Okay, what is that? It is associated with growing too fast and what not. Makes sense because I cannot keep Tim in pants lately. But, we still have an x-ray to make sure. Well, the x-ray is not looking like the disease at all. I even saw the x-ray, and it was funky! So, an MRI is order for Wednesday.

Okay, grab a tissue. Tim goes in for his MRI Wednesday morning. The tech says that it should take about 45 minutes. So, I sit in the waiting room for about an hour. Then my motherly instincts kick in and I question the receptionists about Tim. I am taken back to another waiting room and Tim comes out about 10 minutes later. The tech tells me that another doctor would like to speak with me back at the Urgent Care. So, Tim and I head down there. The doctor tells me that the tech noticed some things after a couple of images came up that looked like Osteogenic Sarcoma. What is that? BONE CANCER! I don't even know what I did next. I just knew I had to be strong for Tim. We are given names and phone numbers of doctors at Primary Children's Medical Center (PCMC) and told that a call hadbeen made to set up an appointment to see a specialist. As Tim and I are walking out to the truck, I lose it and start to tear up. Tim notices this and says, "Mom, it's only bone cancer." Appointments are set up for Friday morning, Cory ends up coming home early from Denver, he and Tim go to a Jazz game and my Mom and I take the girls out to dinner.

Thursday, Tim went back to school. We told him to keep quiet about things until we found out more Friday. Both Cory and I both had a crappy day. We both cried as we thought about Tim's future and questioned "why him?"

Friday, Cory and I take Tim up to PCMC and leave the girls in my Mom's care for the day. First we meet with an Orthopedic Specialist. He gets to know Tim better and exactly what led us to him. He then confirms the tech's thoughts about bone cancer. He orders a CT scan of the lungs and some blood work. The CT scan comes back clear-the cancer is not in Tim's lungs. Next, we meet with an oncologist-cancer doctor-who talked to us about chemo treatments and what to expect next. We checked into same day surgery, then leave the hospital for a couple of hours. Cory and I took Tim to a fast track where he and Cory drove super fast go-carts. Then we went to a motorcycle shop and looked around for awhile. Anything but the hospital; we will be spending a lot of time there soon enough.
Around 4, we were back at PCMC. Tim was scheduled for a biopsy to see for sure if the bump just below Tim's left leg on the tibia, was indeed cancer. And also to find out what kind of bone cancer it is. Tim didn't go to surgery until 7pm. His doctor got caught in another surgery. So, while Tim was in surgery, Cory and I got acquainted with the sweetest couple from Highland. After about an hour, the doctor came out and gave us an update on Tim. YES, he does have cancer, but he not sure what kind yet. More tests have to be done so the right chemo treatment is given. Tim was in surgery for about hour or so to have a central line "port" put in his chest for the chemo treatments. Tim was very loopy coming out of the medicine. It was quite comical! He was also in pain. So after receiving some medicine, he fell back asleep for awhile. We finally left PCMC around 12, gettin home close to 1am.
Today Tim did well. He was up for most of day either watching tv or playing Wii games. He also helped us, a little, to move his room from the basement to a room next to mine and Cory's. That was a difficult change for me. Looking to next week: Monday, Tim goes in for a bone scan to see if the cancer has spread to other bones in his body. Lab work should be back by Tues or Wed. We might know by as early as Tues if the cancer is actually Osteosarcoma. If it is not, then we will not find out until Friday if the cancer is Ewing's sarcoma. Chemo treatments could start as early as next Friday. Tim will most likely have 3 months of treatments, surgery to remove the tumor, then another 5-7 months of chemo. He will have to stay 3-5 days at PCMC while receiving the treatments. He will then go home for about 1 1/2 to 2 weeks, then back up for more treatments. Totally length will be about a year.

So, what does the future hold for us? I really don't know. Tim is going to be really sick, we will be spending a lot of time in a vehicle and at PCMC, and we are going to be tired. But, we will meet awesome people with inspiring stories. Tim will change, but hopefully in a good way, lessons will be learned and our bond as a family will grow stronger. We are grateful to have caught this early and that Tim is young and healthy. We have great families, awesome friends and an amazing ward family that are here to help out:) We are going to fight hard, and we will win!!

I will try to keep the blog updated as things happen :)

12 comments:

Miranda said...

You are all in our prayers! We love you all to no end. Be strong and have faith! If you need anything please let us know!

Becky said...

I keep rereading this in disbelief. I am speechless. Without words. What I know for sure is that Tim is one amazing kiddo and if anyone can beat this, it'll be him. And he'll do it with sound effects. :) I just adore that kid! Hopefully it goes without saying that your family is in our prayers and we'd do anything for you guys.

Brooke said...

I am so sorry that your family has to go through this. You are all very strong and will make it through! My thoughts and prayers are with your family at this difficult time. Please let us know if there is anything at all that you need help with. XOXO

Kristin said...

Wanted to let you know YOU have been on my mind all day! And will continue to be in my(our) prayers.

Love, Kristin J.
(I found you through Tracy T.if you were wondering :) )

Christenson's said...

Amanda, I'm so sorry your family has to go through this. We too will be praying for Tim and your family. I know you and I don't know each other too well, but if you ever need anything let me know.. help with your girls rides etc.... Movies or video games for Tim etc etc!!

Carlye Momma said...

Like Kristin, your family has been on my mind since the "breaking news" in sacrament meeting. I didn't want to bombard you yesterday since I knew you would have plenty of visitors...but please know that you are in our prayers. Whatever you need, babysitters, driving the girls, mommy sitting (I'm sure you'll need some girl time) dinners, lunches, breakfasts...whatever...we are all here for you! Thankfully, like you said, Tim is young and a very active little dude. I'm so sorry you all will have to go through this. Thank you for sharing it with all of us though so that we can be there for you. We love you guys!

Shawn said...

Oh Amanda. My heart is breaking for you. I love you girl. Tim will pull through this and you are going to be an amazing Mom through it all. I know I live far away, but if you ever need ANYTHING, please don't hesitate to ask. I'll keep your family in my prayers. Oh and just a thought from our past...'Cowboy up!!' You got this. Don't forget your Heavenly Father is mindful of you and your family. Stay close to Him. I love ya. ;)

Cami said...

He was pretty funny coming out of surgery:) Thinking of you and hoping that the results show it did not spread. You have such a great attitude, and I know that will help to pull you all of through this! It was fun meeting you and your husband. It helps tp talk to others in the hospital...just to keep your mind off of why you are really there. There are such valuable lessons to be learned when faced with trials, and I know that Tim is going to come out with wisdom beyond his years.

Ashley Smith said...

I saw a post on facebook from Cory and thought that it had to be a joke (although who would joke about their son having cancer- I know.) I am so sorry to hear about all of this! You and your family are in our prayers and thoughts. I know great blessings are in store for your family.

misty said...

I can't imagine the emotions you and your family have been through. We are anxiously awaiting each update and so glad when the news is positive. Please continue to let us know how we can help and support you, Tim, and the whole family. You are of course in our prayers.

Nicole said...

you are in our prayers daily. The kids even ptay for you at meal times. Tim is a strong and amazing young man and will come out of this you'll see! We love your family so much and please let us know however we can help! Thanks for sharing your story with us.

Anna Knowles said...

I didn't take your advice and grab a tissue . . . big mistake. Love you guys, you're in my thoughts and prayers! You are fighters and you will win!